If you have been diagnosed with VEDS, this group is specifically for you! This is an opportunity to meet others with VEDS and talk about the challenges we all face day-to-day. If you have not yet been diagnosed with VEDS, please check out the Seeking Diagnosis group here.

Have you been diagnosed with Marfan syndrome, VEDS, Loeys-Dietz syndrome or another related condition? Are you between the ages of 18 and 30?  Would you like to connect with others in your age group? If so, this support group is for you.

This group meets on the first Wednesday of every month at 7 pm EST.

This group is for adults, 18-50, with Marfan syndrome or a related condition. Participants have the opportunity to connect with others with a similar diagnosis for support and sharing of resources and information. This group meets on the 1st Thursday of every month at 5:00 PM Eastern.

Please join Cincinnati Children’s Hospital, Riley Hospital for Children, and The Marfan Foundation for an educational opportunity for individuals and families living with Marfan, Loeys-Dietz, and VEDS. The event includes a Creating Connections luncheon, which enables attendees to network with the speakers and connect with other people in the area who also have their condition.

In addition to the presentations, there will be a concurrent program for children, ages 5-12 years old.

Join others in our connective tissue condition communities to share concerns and discuss issues related to everyday life. You will feel supported, heard, and enjoy the time spent with others.

This group discussion is dedicated to the challenges our community faces when we lose our beloved friends, community members, and family members to VEDS, Marfan, or Loeys-Dietz syndrome. It is a safe place for us to discuss our emotions, honor the memory and joy of our loved ones, and move forward together. This group is also open to anyone coping with loss in the community.

This group meets on the 2nd Tuesday of every month at 6:00 PM Eastern.

If you have been diagnosed with LDS, this group is specifically for you! This is an opportunity to meet others with LDS and talk about the challenges we all face day-to-day. If you have not yet been diagnosed with LDS, please check out the Seeking Diagnosis group here.

Are you diagnosed with Marfan syndrome or a related condition? Are you 50 years old or older? Would you like to connect with others in your age group? If so, this group is for you. This group meets on the 3rd Friday of every month at 3:00 PM Eastern.

The Marfan Foundation is hosting a virtual group for Teens ages 13-18 with Marfan syndrome, VEDS, Loeys-Dietz syndrome and related genetic aortic and vascular conditions, to increase opportunities for social interaction with others who have a similar diagnosis. The Teen Talk will include open conversation and connection on various appropriate topics and will be led by our staff member, Dominga Noe and our volunteer leader Peter Donato. This group is not designed to offer therapy or counseling, but rather an opportunity to speak on the highs and lows of living with chronic conditions and be more connected with others in the same age group.

Each group will run for approximately 90 minutes and will be held from 7:30-9:00 pm ET on the third Monday of each month, beginning in February 2021 (Feb. 18th). The group will be held on Zoom. It is expected that teens join on camera and participate for the duration of the group. Pre-registration and parental/guardian consent for the group is required.

Join us for the Kids Club, a virtual social group for children ages 9-12 with Marfan syndrome, VEDS, Loeys-Dietz syndrome, and related genetic aortic and vascular conditions to increase opportunities for social interaction and connection with others who have a similar diagnosis.

The Kids Club will include fun, age-appropriate games and activities for your child (such as Bingo, Would You Rather, Scavenger Hunt, 5 Second Rule, etc) and will be held on Zoom.

This is a recurring group that meets monthly on the third Tuesday of every month. (Register once and attend any dates)