The Foundation’s Professional Advisory Board has issued an updated 2025 statement regarding COVID-19 vaccinations for both adults and children with Marfan, Loeys-Dietz, and VEDS, and related conditions. This guidance reflects the latest research and clinical expertise to help individuals and families make informed decisions about vaccination and ongoing health protection.
If you have additional medical questions, please submit them to our Help & Resource Center.
Le syndrome de Marfan est souvent à l’origine de problèmes au niveau des os et des articulations. Ce sont en réalité souvent ces caractéristiques qui amènent en premier une personne à soupçonner un syndrome de Marfan et à chercher à obtenir un diagnostic. Ces caractéristiques (désignées caractéristiques squelettiques) se manifestent lorsque les os dépassent la […]
Marfan syndrome and some related disorders can affect the eyes in many ways, causing dislocated lenses and other eye problems that can affect your sight. Except for dislocated lenses, these eye problems also occur in the general population, which is why doctors do not always realize they are caused by Marfan syndrome. It is important […]
Bicuspid aortic valve (BAV) is a defect of the aortic valve that is present at birth. The aortic valve allows oxygen-rich blood to flow from the heart to the aorta. The aorta is the major blood vessel that brings blood to the body. Normally, there are three valve flaps (leaflets) in the aortic valve. In […]
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