El Síndrome de Marfan es un trastorno del tejido conectivo. El tejido conectivo es el que hace que todas las partes del cuerpo se mantengan en su lugar y ayuda a controlar el crecimiento del cuerpo. Como el tejido conectivo se encuentra en todo el cuerpo, las características del Síndrome de Marfan pueden ocurrir en diferentes partes del cuerpo.
Related Resources
Loeys-Dietz Syndrome Emergency Alert Card
Download the Loeys-Dietz Syndrome Foundation's Emergency Alert Card, as well as watch a short instructional video we put together to show exactly how to fill out and fold this card.
Patient Care Coordination Instructions
In order to have better outcomes in the emergency department for people with genetic aortic and vascular conditions, a Patient Care Coordination Note (PCCN), can provide triage nurses and ER physicians, with life-saving information for these rare conditions. This patient care coordination note appears in the upper left hand corner in red, when you open […]
Tags: All, VEDS , Healthcare Professionals, Patients & Families
Notfallkarte
Karte für jedes Haushaltsmitglied ausdrucken. Geben Sie den Patientennamen und die Kontaktdaten ein. Entlang der gestrichelten Linie schneiden. Vertikal und horizontal falten. Tragen Sie diese Karte immer bei sich.
Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.