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Ectopia Lentis Syndrome Fact Sheet

In some families, dislocation of the lens of the eye (ectopia lentis) is the predominant feature that passes from generation to generation. Sometimes, this occurs along with some of the skeletal (bone and joint) features of Marfan syndrome. This combination of features is called ectopia lentis syndrome.

  • What are the characteristics of ectopia lentis syndrome?
  • How is ectopia lentis syndrome diagnosed?
  • How is ectopia lentis syndrome managed?
  • What is the life expectancy of someone with ectopia lentis syndrome?

Find these answers and more in the “Ectopia Lentis Syndrome” download.

Updated April 2021

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