Related Resources
Tags: VEDS , Caregivers, Patients & Families, Teens & Children
Marfan DX
We compiled the 2010 Revised Ghent Nosology for Marfan Syndrome into a simple diagnostic tool to put the updated criteria right in your hands. It is designed for all healthcare professionals involved in the diagnosis of Marfan syndrome, including general practitioners and specialists such as pediatricians, cardiologists, orthopedists, ophthalmologists, and geneticists.
Tags: All , Healthcare Professionals
Directory of Medical Institutions (Clinic Directory)
A coordinated clinic is the best place to go for Marfan syndrome and related disorders care. A coordinated clinic provides expertise in all Marfan-related specialties: genetics, cardiology (heart), ophthalmology (eyes), and orthopedics (bones and joints). Download our clinic directory, which is comprised of institutions around the country that treat Marfan syndrome and related conditions. We […]
Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.