This Parent Toolkit is a resource for parents of children with Marfan, Loeys-Dietz, VEDS, or another genetic aortic condition. It offers resources to help you deal with your child’s school, doctors, and healthcare, and guide you to additional resources for information and support.
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Tags: Marfan Syndrome , Patients & Families
Les Dents Et Le Syndrome De Marfan
De nombreuses personnes atteintes du syndrome de Marfan et de certaines maladies apparentées possèdent une mâchoire étroite et un palais très arqué, ce qui peut entraîner des problèmes dentaires et orthodontiques. En outre, les personnes avec un prolapsus de la valve mitrale ou porteuses de valves cardiaques artificielles sont à risque d’endocardite (infection du coeur […]
Tags: Marfan Syndrome , Patients & Families
Endovascular Repair in Marfan Syndrome Patients
Endovascular Repair in Marfan Syndrome Patients The Professional Advisory Board of The Marfan Foundation is in agreement with the Expert Consensus Document on the Treatment of Descending Thoracic Aortic Disease Using Endo-Vascular Stent-Grafts (Ann Thorac Surg 2008;85:S1-41) and the American Heart Association (AHA) guidelines entitled “Surgical Management of Descending Thoracic Aortic Disease: Open and Endovascular […]
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Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.