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Related Resources
Genetic Testing and Marfan Syndrome
Genetic testing for mutations in fibrillin-1 (FBN1) and other genes has become an important and reliable option to aid in the diagnosis of Marfan syndrome and related disorders. However, the results of genetic testing for the diagnosis of disorders are not always straightforward. Therefore, working with a medical geneticist (a physician with training in genetics) […]
Tags: Marfan Syndrome , Patients & Families
Los Ojos de Marfan
El síndrome de Marfan puede afectar a los ojos de muchas maneras. Es por este motivo que las personas con síndrome de Marfan deben consultar a un oftalmólogo (un doctor médico que se especializa en los ojos) para saber si tienen algún problema y también para saber cómo pueden cuidar de sus ojos. He aquí […]
Tags: Marfan Syndrome , Caregivers, Patients & Families
Emergency Preparedness Kit
Emergency Preparedness Kit This kit is your tool to help you be prepared in the event of an emergency. We suggest putting the completed packet in a brightly colored envelope or folder so it is easy to find. At home, keep it near the door so it is handy for Emergency Medical Services (EMS) and […]
Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.
