Le decisioni in merito alla pianificazione familiare possono essere difficili ed emotivamente molto impegnative quando uno dei futuri genitori soffre di una malattia genetica, come la sindrome di Marfan. Prima di prendere qualsiasi decisione, i genitori devono conoscere le numerose opzioni attualmente disponibili nonché i rischi potenziali per la madre e il bambino. Un consulente genetico o l’infermiere del centro di assistenza e informazioni della Marfan Foundation potranno illustrare le opzioni disponibili e fornire informazioni.
Related Resources
Need-to-Know Information for the Teacher
Marfan syndrome is a life-threatening genetic disorder that causes some physical problems that can interfere with a student’s ability to perform in the classroom without modifications. These physical limitations cause many students living with the disorder to feel isolated and alone. We hope this guide enables educators to: Understand the basics of Marfan syndrome and […]
Tags: All, Marfan Syndrome , Caregivers, Patients & Families
Family Planning and Pregnancy
Decisions about family planning can be difficult and very emotional when one of the prospective parents has a genetic disorder, such as Marfan syndrome. Before making any decisions, parents should understand the many options now available, as well as the potential risks to the child and the mother. A genetic counselor or the nurse in […]
Die Zähne Beim Marfan-Syndrom
Viele Menschen mit Marfan-Syndrom und einigen anderen verwandten Erkrankungen haben einen schmalen Kiefer und einen hochgewölbten Gaumen, was zu Zahn- und Kieferproblemen führen kann. Darüber hinaus besteht bei Patienten mit Mitralklappenprolaps und künstlichen Herzklappen bei Zahnbehandlungen das Risiko einer Endokarditis (Infektion des Herzens und der Herzklappen), weshalb die Empfehlungen zur Endokarditisprävention (Prophylaxe) zu beachten sind.
Tags: Marfan Syndrome , Patients & Families
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Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.