Le decisioni in merito alla pianificazione familiare possono essere difficili ed emotivamente molto impegnative quando uno dei futuri genitori soffre di una malattia genetica, come la sindrome di Marfan. Prima di prendere qualsiasi decisione, i genitori devono conoscere le numerose opzioni attualmente disponibili nonché i rischi potenziali per la madre e il bambino. Un consulente genetico o l’infermiere del centro di assistenza e informazioni della Marfan Foundation potranno illustrare le opzioni disponibili e fornire informazioni.
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Teeth in Marfan Syndrome
Many people with Marfan syndrome and some related disorders have narrow jaws and high-arched palates, which can create dental and orthodontic problems. In addition, people with mitral valve prolapse and artificial heart valves are at risk for endocarditis (infection of the heart and heart valves) when they have dental work, and should follow recommendations for […]
Tags: Marfan Syndrome , Patients & Families
Walk for Victory Registration Guide
Register for your Walk for Victory by following the simple steps in our registration guide. Whether you join as an individual or create a team, we look forward to seeing you soon!
Tags: All , Patients & Families
Tags: Marfan Syndrome , Patients & Families
Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.