Le decisioni in merito alla pianificazione familiare possono essere difficili ed emotivamente molto impegnative quando uno dei futuri genitori soffre di una malattia genetica, come la sindrome di Marfan. Prima di prendere qualsiasi decisione, i genitori devono conoscere le numerose opzioni attualmente disponibili nonché i rischi potenziali per la madre e il bambino. Un consulente genetico o l’infermiere del centro di assistenza e informazioni della Marfan Foundation potranno illustrare le opzioni disponibili e fornire informazioni.
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Recommended Criteria for Development of a Marfan Clinic
The diagnosis, evaluation, and management of Marfan syndrome and related conditions require health practitioners from multiple disciplines with specialized knowledge, skills, and experience in heritable disorders of connective tissue. Patients and families are best served in clinics with demonstrated interest and expertise in this field.
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Walk for Victory Registration Guide
Register for your Walk for Victory by following the simple steps in our registration guide. Whether you join as an individual or create a team, we look forward to seeing you soon!
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Chirurgie Cardiaque
Les personnes atteintes du syndrome de Marfan présentent souvent des problèmes au niveau du coeur et des vaisseaux sanguins. Ces problèmes peuvent parfois être très graves. La complication la plus fréquente concerne l’aorte (le principal vaisseau sanguin qui transporte le sang du coeur vers le reste du corps). Les valves cardiaques peuvent également être affectées. […]
Tags: Marfan Syndrome , Patients & Families
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