Entscheidungen über die Planung einer Familie können schwierig und emotional sein, wenn eines der zukünftigen Elternteile eine genetische Erkrankung wie das Marfan-Syndrom hat. Bevor eine Entscheidung getroffen wird, sollten sich Eltern über die vielen Möglichkeiten informieren, die heutzutage zur Verfügung stehen, sowie über die möglichen Risiken für Mutter und Kind. Ein genetischer Berater oder die medizinische Fachkraft im Help & Resource Center der Marfan Foundation kann Ihnen Informationen geben und Ihre Optionen mit Ihnen besprechen.
Related Resources
Virtual Medical Symposium Series
Prepare for Victory: Virtual Medical Symposium Series is a webinar series that will arm you with the latest diagnosis and treatment information from the experts.
COVID-19 Vaccine Statements
The Foundation’s Professional Advisory Board has issued an updated 2025 statement regarding COVID-19 vaccinations for both adults and children with Marfan, Loeys-Dietz, and VEDS, and related conditions. This guidance reflects the latest research and clinical expertise to help individuals and families make informed decisions about vaccination and ongoing health protection. If you have additional medical […]
Chirurgia Cardiaca
Le persone affette da sindrome di Marfan spesso hanno problemi al cuore e ai vasi sanguigni, a volte anche molto gravi. La complicazione più comune riguarda l’aorta (il vaso sanguigno che porta il sangue dal cuore al resto dell’organismo). Possono essere interessate anche le valvole cardiache. Più raramente sono colpiti vasi sanguigni diversi dall’aorta. È […]
Tags: Marfan Syndrome , Patients & Families
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