Das Marfan-Syndrom ist eine lebensbedrohliche genetisch bedingte Erkrankung des Bindegewebes. Wenn die Anzeichen des Marfan-Syndroms richtig erkannt werden, eine korrekte Diagnose gestellt wird und die Erkrankung richtig behandelt wird, können Patienten mit Marfan-Syndrom ein langes und erfülltes Leben führen.
Related Resources
Innovators Award
This is for faculty investigators for $100,000 over 2 years ($50,000 per year), to explore an innovative concept in “translational” science that has applicability to improving human health. Examples could include fundamental research, diagnostic tests, biomarkers, biomedical engineering advances, and imaging advances. Collection of data for improved evidence-based medical guidance are of great interest. Deadlines: […]
Tags: All , Healthcare Professionals, Researchers
Career Development Award
The Career Development Award will support two-year $100,000 grants ($50,000 per year) in basic, translational, or clinical research studying any discipline involved in Marfan syndrome, Loeys-Dietz syndrome, Vascular Ehlers-Danlos syndrome, and other related conditions. This grant program is designed to support investigators early in their career to derive preliminary data in a key concept area […]
Tags: All , Healthcare Professionals, Researchers
Linee Guida Per L’Attività Fisica
L’attività fisica regolare migliora il benessere fisico e psicologico e può essere integrata in tutta sicurezza nella routine di chi soffre di sindrome di Marfan. Le persone affette da sindrome di Marfan sono pertanto incoraggiate ad adottare misure di salute che le proteggano dalle caratteristiche della sindrome che possono peggiorare e dalle malattie che fanno […]
Tags: Marfan Syndrome , Patients & Families
Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.