Das Marfan-Syndrom ist eine lebensbedrohliche genetisch bedingte Erkrankung des Bindegewebes. Wenn die Anzeichen des Marfan-Syndroms richtig erkannt werden, eine korrekte Diagnose gestellt wird und die Erkrankung richtig behandelt wird, können Patienten mit Marfan-Syndrom ein langes und erfülltes Leben führen.
Related Resources
Mental Health Resources
While most people with chronic conditions focus on their physical health, mental health is often ignored. Having a connective tissue condition isn’t easy, so give your mind the TLC it needs.
Tags: All , Caregivers, Patients & Families
Marfan Fashion Resources
Have a hard time finding pants with long enough legs? Can’t find shoes that fit? Your Marfan Foundation Teen Council came up with the idea for this resource just for you! If you have any suggestions of brands/ stores that should be added, please send them to us at staff@marfan.org. This guide provides information about brands […]
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Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.