A Lunch with Heart Palm Beach
We are delighted to present A Lunch with Heart Palm Beach, a sophisticated new addition to The...
Know the Signs, Fight for Victory
We are delighted to present A Lunch with Heart Palm Beach, a sophisticated new addition to The...
Beyond Direct-to-Consumer: Choosing the Right Genetic Testing for Marfan, LDS, VEDS, Stickler, and...
This support group is for people with Marfan syndrome or related conditions who are interested in...
Join the Northern IL Chapter for outdoor fall fun for the whole family with a hayride, bonfire,...
In honor of those who observe Yom Kippur, we are changing the dates of the two support groups...
Please join us for an educational webinar, Hearing in Stickler: Diagnosis and Treatment. This free...
This webinar will highlight life with Stickler syndrome from clinical and lived experience...