If you were recently diagnosed with Marfan syndrome or if you have known about it for years, there are probably hundreds of thoughts, questions, and concerns rushing through your head. On one hand, there is a whole new world of medical information to learn. On the other hand, there is your life as a teen.

This resource answers common teen questions head-on so you don’t have to wonder. If you have other questions, please know that the Marfan community is here for you. There is always someone to talk to who has gone through the same thing, has had similar emotions, and has overcome the same challenges.