2026 marks the 12th anniversary of the Driving for DEFY golf outing! Together, we have raised over $160,000 in support of the DEFY Foundation’s mission to enable the rapid discovery of viable treatments and a cure for VEDS by serving as the connective tissue between researchers, pharmaceutical leaders, and the VEDS community. This year also marks a new chapter for the DEFY Foundation, as we join forces with The Marfan Foundation and its Vascular Ehlers-Danlos division, The VEDS Movement. 

What’s not changing? The Driving for DEFY event! We are planning our usual fun-filled day of golf, on-course competitions, catered lunch, and raffles. It’s sure to be another great day at the course with the wonderful DEFY community that we’ve all come to love.