Tag: The Marfan Foundation

A New Era in Loeys-Dietz Syndrome: Personalized Care for a Complex Condition

More than two decades after Loeys-Dietz syndrome (LDS) was first identified, an updated...

Announcements, News June 12, 2026June 12, 2026

May 26, 2026May 27, 2026

Tall Clubs International Casino Night

Dinner, DJ & DancingBlackjack, Roulette, Craps Silent Auction and RaffleAdmission is $80.00...

May 14, 2026May 14, 2026

Walk For Victory – New Jersey

Join the Walk for Victory movement! Together, we celebrate community! Meet and reconnect...

May 13, 2026May 13, 2026

2026 Global Virtual Conference

The Marfan Foundation’s 2026 Global Virtual Conference brings together a global community of...

May 6, 2026May 6, 2026

6th Annual Houston HeartWorks Gala

You’re invited to an unforgettable evening at the 6th Annual Houston HeartWorks Gala. In...

May 6, 2026May 11, 2026

Simposio Internacional en Barcelona

Simposio Internacional en Barcelona: Claves para una vida plena con Marfan, Loeys-Dietz, VEDS y...

April 28, 2026April 28, 2026

31st Annual Memorial Walk-a-Thon

This is a memorial walk in memory of those who have passed due to Marfan syndrome and related...

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