Learning anything new is challenging, and this is especially true when you are trying to learn about a complex medical condition. The words and concepts may be unfamiliar. Some of the details can be troubling. It can be difficult to know what to do with all the information you gather.
We’re here to help. We offer a wealth of information for you and your loved ones about Marfan syndrome and related conditions, as well as special resources for children and teens. Our goal is to help you learn what you need to know quickly and support your next steps.
Explore the links below to learn more about these conditions and how they are treated and cared for.
-
Marfan Syndrome
-
Neonatal Marfan Syndrome
-
Loeys-Dietz Syndrome
-
Vascular Ehlers-Danlos Syndrome (VEDS)
-
Kyphoscoliotic Ehlers-Danlos Syndrome (kEDS)
-
Stickler Syndrome
-
Beals Syndrome
-
Bicuspid Aortic Valve
-
Ectopia Lentis Syndrome
-
Ehlers-Danlos Syndrome
-
Familial Thoracic Aortic Aneurysm and Dissection
-
Mass Phenotype
-
Shprintzen-Goldberg Syndrome
Have a question? We can help.
Contact our Help & Resource Center by submitting a question via the link below.
Conference
Our conference brings together the entire Marfan and related conditions community to learn about the latest research, get questions answered by leading experts, and form new friendships. Free health assessments provided by connective tissue experts are available at the in-person conference, and special age-appropriate programs are provided for children, teens, and young adults.