Know the Signs, Fight for Victory

There are many ways to become a Volunteer for Victory. There’s something for everyone – from one-time projects to ongoing campaigns, community events to set up or outreach from the comfort of your own home. Regardless of your age or location, there are many ways for you to get involved.

Not sure which volunteer is right for you? Please email volunteer@marfan.org to arrange a one-on-one consultation.

Social Media Awareness Team

Got followers? Use your social media influence and get the inside track on announcements and new graphics from the Foundation.

Writing Team

Share your story! Utilize your writing talent to help us create content for all sorts of Foundation communication platforms, like our blog, newsletter, and more.

Legislative Ambassadors

Your voice matters! Share your story and contact your local elected officials to inform them about issues important to the Marfan and related conditions community.

Community Fundraising

Supporting and fundraising on behalf of The Marfan Foundation has never been easier! We’ve created our Community Fundraising program to help you quickly raise money through your connections.

Community Awareness Team

Local events are a great way to raise awareness for The Marfan Foundation. Get involved by organizing an event in your area.

Event Volunteers

Want to help out at our events? Find out what is happening in your area and how you can help.