This Parent Toolkit is a resource for parents of children with Marfan, Loeys-Dietz, VEDS, or another genetic aortic condition. It offers resources to help you deal with your child’s school, doctors, and healthcare, and guide you to additional resources for information and support.
Related Resources
Gli Occhi Nella Sindrome Di Marfan
La sindrome di Marfan e alcune malattie correlate possono interessare gli occhi in svariati modi, ad esempio causando lo spostamento del cristallino e altri problemi oculari in grado di compromettere la vista. Fatta eccezione per lo spostamento del cristallino, questi problemi oculari possono verificarsi anche nella popolazione generale e questo è il motivo per cui […]
Tags: Marfan Syndrome , Patients & Families
Z-Score Calculator for Adults
Different methods are used for aortic root dilatation in different publications (eg.diastolic versus systolic measurement, inner to inner or leading edge to leading edge diameters).
Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.