N Illinois Chapter Fall Picnic
Let's enjoy a fall afternoon together in Naperville at Seager Park! We’ll start with a hayride...
Author: Dominga Noe
Dominga Noe was diagnosed with Marfan syndrome when she was nine years old. After graduating from Wagner College with a BS in Arts Administration, began working for The Marfan Foundation in 2016 as the first staff member with Marfan. Now she lives and works from Kansas City, MO as the Foundation's Technical Content Manager, Teen Group Leader, and Teen Council Chair.
New England Regional Symposium: Living Better with Marfan, Loeys-Dietz, and VEDS
For the Symposium Program: Click here If the registration fee is an issue, please contact...
New Jersey Regional Symposium: Living Better with Marfan, Loeys-Dietz, and VEDS
To download the program: Click Here ...
Evening with Heart Scottsdale
You are invited to join us for a special evening at Evening With Heart Scottsdale -...
<Rescheduled> Support for Young Adults with Marfan, VEDS, LDS and related conditions
Have you been diagnosed with Marfan syndrome, VEDS, Loeys-Dietz syndrome or another related...
Uncorked
You are invited to join us for a special evening at a tasting event on Thursday, October 24th at...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
Together, We Can Know the Signs
and Fight for Victory
