VEDS Connect
1st Tuesday of each month at 8 pm Eastern Time If you have been diagnosed with VEDS, this group...
Author: Lauren Atherton
Coping with Grief and Loss
This group discussion is dedicated to the challenges our community faces when we lose our beloved...
Marfan Connect
This group is for adults aged 18-50 with Marfan syndrome or a related condition. Participants...
Marfan Connect (50+) Support
Are you diagnosed with Marfan syndrome or a related condition? Are you 50 years old or older? Would...
Pain Management
This support group is for people with Marfan syndrome or related conditions who are interested...
Newly Diagnosed & Those Seeking Diagnosis
Are you or a loved one recently diagnosed with Marfan syndrome or a related condition? Are you or a...
2021 St. Louis Walk For Victory
Walk for Victory is The Marfan Foundation’s global walk program that brings the Marfan...
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