Author: Lauren Atherton

Mental Health

Mental Health Mental health refers to psychological, emotional, and social well-being. While...

March 10, 2023May 8, 2024

November 14, 2022August 19, 2025

Kids Club

Join us for the Kids Club, a virtual social group for children ages 9-12 with Marfan syndrome,...

October 31, 2022December 3, 2025

A Time to Talk: Monday Matters!

Join others in our connective tissue condition communities to share concerns and discuss issues...

Spanish Language Summit

QUINTA CUMBRE ANUAL EN ESPAÑOL Información y apoyo sobre Marfan, Loeys-Dietz, VEDS y...

October 29, 2021March 3, 2022

Evening with Heart Raleigh

Enjoy a special night at Evening with Heart Raleigh. Cocktails, light bites, a silent auction, and...

Languages

Resources for Different Languages We are happy to provide information about Marfan syndrome...

October 16, 2021

Aortic Dissection Evaluation Pathway

Aortic Dissection Evaluation...

Together, We Can Know the Signs
and Fight for Victory

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Know the signs. Fight for victory.

Join us in the fight for victory over Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions. Help us create a world in which everyone with these conditions can live their best life.

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Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory