Author: Suely Johns

Suely Johns, of Valencia, CA, is a member of the Los Angeles/Orange County Network Group. She is the mother of a son, Ethan, 11, who was diagnosed with Marfan syndrome at 7 months.

Suely Johns – My Marfan Story

When I shared that my victory over Marfan and related disorders was "Finding a MarFriend and a...

Community, Family Planning May 28, 2014February 25, 2021

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Suely Johns – My Marfan Story

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