This book was created to help readers understand the basics of Marfan syndrome diagnosis and treatment, as well to provide guidance on the lifestyle and practical issues commonly encountered by people with Marfan syndrome or a related disorder. Perhaps you have recently been diagnosed with Marfan syndrome—what should you expect? Or your child’s pediatrician has suggested he or she be evaluated for Marfan syndrome—what does that entail? Or maybe your new spouse has Marfan syndrome and you want to have children—what are the risks and can you do anything to minimize them? This book aims to address these and many other questions.
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Tags: Marfan Syndrome , Teens & Children
Información esencial para los PROFESORES
El síndrome de Marfan es un trastorno genético potencialmente mortal que causa algunos problemas físicos que pueden interferir con la capacidad de un estudiante para desempeñarse en el aula sin modificaciones. Estas limitaciones físicas hacen que muchos estudiantes que viven con este trastorno se sientan aislados y solos. Esperamos que esta guía permita a los […]
Tags: Teens & Children
Richtlinien Für Körperliche Bewegung
Regelmäßige Bewegung verbessert sowohl das körperliche als auch das emotionale Wohlbefinden und kann sicher in den Alltag von Patienten mit Marfan-Syndrom integriert werden. Daher werden Marfan-Patienten dazu angehalten, Maßnahmen zum Schutz ihrer Gesundheit zu ergreifen, die sie vor der Verschlechterung von Marfan-Merkmalen schützen und vor Erkrankungen bewahren, die ein normaler Teil des Alterungsprozesses sind. Wenn […]
Tags: Marfan Syndrome , Patients & Families
Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.