Encuentre un doctor que esté familiarizado con el síndrome de Marfan. El síndrome de Marfan es raro y no todos los doctores lo conocen. Necesita buscar un doctor que conozca el el Sindrome de Marfan y que sepa ver la diferencia entre el Sindrome de Marfan y otros trastornos médicos que aparentan ser iguales.
Related Resources
Know the Signs of an Aortic Aneurysm and Dissection
People with Marfan syndrome are at up to 250 times greater risk of aortic dissection (a tear or rupture between layers of the aortic wall) than the general population. That’s why it’s important to know the signs of an aortic dissection and what to do. Symptoms of aortic aneurysm may be related to the location, […]
A Guide to Marfan Syndrome and Related Disorders
This book was created to help readers understand the basics of Marfan syndrome diagnosis and treatment, as well to provide guidance on the lifestyle and practical issues commonly encountered by people with Marfan syndrome or a related disorder. Perhaps you have recently been diagnosed with Marfan syndrome—what should you expect? Or your child’s pediatrician has […]
Tags: Marfan Syndrome , Patients & Families
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