This book was created to help readers understand the basics of Marfan syndrome diagnosis and treatment, as well to provide guidance on the lifestyle and practical issues commonly encountered by people with Marfan syndrome or a related disorder. Perhaps you have recently been diagnosed with Marfan syndrome—what should you expect? Or your child’s pediatrician has suggested he or she be evaluated for Marfan syndrome—what does that entail? Or maybe your new spouse has Marfan syndrome and you want to have children—what are the risks and can you do anything to minimize them? This book aims to address these and many other questions.
Related Resources
Cómo Saber Si Tiene Síndrome de Marfan
Encuentre un doctor que esté familiarizado con el síndrome de Marfan. El síndrome de Marfan es raro y no todos los doctores lo conocen. Necesita buscar un doctor que conozca el el Sindrome de Marfan y que sepa ver la diferencia entre el Sindrome de Marfan y otros trastornos médicos que aparentan ser iguales.
Tags: Marfan Syndrome , Patients & Families
Familienplanung Und Schwangerschaft
Entscheidungen über die Planung einer Familie können schwierig und emotional sein, wenn eines der zukünftigen Elternteile eine genetische Erkrankung wie das Marfan-Syndrom hat. Bevor eine Entscheidung getroffen wird, sollten sich Eltern über die vielen Möglichkeiten informieren, die heutzutage zur Verfügung stehen, sowie über die möglichen Risiken für Mutter und Kind. Ein genetischer Berater oder die […]
Tags: Marfan Syndrome , Patients & Families
Marfan Fashion Resources
Have a hard time finding pants with long enough legs? Can’t find shoes that fit? Your Marfan Foundation Teen Council came up with the idea for this resource just for you! If you have any suggestions of brands/ stores that should be added, please send them to us at staff@marfan.org. This guide provides information about brands […]
Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.