L’anamnesi familiare è una raccolta di informazioni sanitarie su di te e sui tuoi parenti stretti. Contiene informazioni su disturbi, malattie e problemi di salute che tu e i tuoi figli potreste essere a rischio per ora o in futuro. Più importante, può anche aiutare i tuoi medici a valutare se hai o meno la sindrome di Marfan o un disturbo correlato. Abbiamo creato un pacchetto di storia sanitaria familiare per aiutarti a compilare queste informazioni. Ti invitiamo a compilarlo e portarlo con te dal tuo medico se tu o un altro membro della famiglia state valutando per la sindrome di Marfan o un disturbo correlato. Condividere queste informazioni con i tuoi medici, anche al tuo primo appuntamento, può aiutare ad accelerare la diagnosi.
Related Resources
La Peau Et Le Syndrome De Marfan
Des vergetures (striae atrophicae) peuvent apparaître sur la peau de quiconque, en particulier à la suite d’une croissance rapide pendant l’adolescence, d’une grossesse ou d’une perte ou prise de poids importante. Les personnes atteintes du syndrome de Marfan sont sujettes à la formation de vergetures, souvent à un âge précoce et sans changement de poids. […]
Tags: Marfan Syndrome , Patients & Families
MASS Phenotype
MASS Phenotype is a connective tissue disorder that is similar to Marfan syndrome in that people with the condition have the similar Mitral valve, Aorta, Skin, and Skeletal features. People with MASS phenotype do not have lens dislocation, but rather myopia (nearsightedness), and do not show progressive and dangerous aortic root enlargement, hallmark features of Marfan syndrome. What other […]
A Guide to Marfan Syndrome and Related Disorders
This book was created to help readers understand the basics of Marfan syndrome diagnosis and treatment, as well to provide guidance on the lifestyle and practical issues commonly encountered by people with Marfan syndrome or a related disorder. Perhaps you have recently been diagnosed with Marfan syndrome—what should you expect? Or your child’s pediatrician has […]
Tags: Marfan Syndrome , Patients & Families
Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.