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How to Ask for Help Guides
When you’re recovering from surgery or having a pain flare-up, people often ask how they can help. But when you’re not feeling well, it’s hard to know what to say. These worksheets are designed for adults, teens, and kids to communicate the best ways to support them through medical events.
Ossa E Articolazioni Nella Sindrome di Marfan
SINDROME DI MARFAN La sindrome di Marfan causa frequentemente problemi alle ossa e alle articolazioni, che infatti sono spesso le prime caratteristiche che portano a sospettare la presenza della sindrome e a cercare una diagnosi. Queste caratteristiche (chiamate caratteristiche scheletriche) si manifestano quando le ossa crescono eccessivamente oppure i legamenti (il tessuto connettivo che tiene […]
Tags: Marfan Syndrome , Patients & Families
Summary of Diagnostic Criteria
The diagnosis of Marfan syndrome relies on a set of defined clinical criteria (the Ghent nosology) developed to facilitate accurate recognition of the syndrome and improve patient management and counseling.
Tags: All , Healthcare Professionals
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Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.