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Les Os Et Les Articulations Et Syndrome De Marfan
Le syndrome de Marfan est souvent à l’origine de problèmes au niveau des os et des articulations. Ce sont en réalité souvent ces caractéristiques qui amènent en premier une personne à soupçonner un syndrome de Marfan et à chercher à obtenir un diagnostic. Ces caractéristiques (désignées caractéristiques squelettiques) se manifestent lorsque les os dépassent la […]
Tags: Marfan Syndrome , Patients & Families
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A Guide to Marfan Syndrome and Related Disorders
This book was created to help readers understand the basics of Marfan syndrome diagnosis and treatment, as well to provide guidance on the lifestyle and practical issues commonly encountered by people with Marfan syndrome or a related disorder. Perhaps you have recently been diagnosed with Marfan syndrome—what should you expect? Or your child’s pediatrician has […]
Tags: Marfan Syndrome , Patients & Families
Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.
