Stampa la carta per ogni membro della famiglia. Inserisci il nome del paziente e le informazioni di contatto. Taglia lungo la linea tratteggiata. Piega verticalmente e orizzontalmente. Porta sempre con te questa carta.
Related Resources
Directory of Medical Institutions (Clinic Directory)
A coordinated clinic is the best place to go for Marfan syndrome and related disorders care. A coordinated clinic provides expertise in all Marfan-related specialties: genetics, cardiology (heart), ophthalmology (eyes), and orthopedics (bones and joints). Download our clinic directory, which is comprised of institutions around the country that treat Marfan syndrome and related conditions. We […]
Familial Aortic Aneurysm and Dissection
A thoracic aortic aneurysm is an enlargement of the aorta in the thoracic cavity (chest area), which is the first part of the artery that takes blood away from the heart. A thoracic aortic aneurysm can progressively enlarge over time and doesn’t usually have symptoms. However, if an enlarged aneurysm is not surgically repaired, it […]
Die Lunge Beim Marfan-Syndrom
Viele Patienten mit Marfan-Syndrom und einigen verwandten Erkrankungen haben Probleme mit ihrer Lunge. Wenn Sie das Marfan-Syndrom haben, ist es wichtig, dass Sie einen Pneumologen (einen Spezialisten für Lungenkrankheiten) aufsuchen, wenn Sie den Verdacht haben, dass Sie Probleme mit Ihrer Lunge haben.
Tags: Marfan Syndrome , Patients & Families
Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.