Know the Signs, Fight for Victory

Research Topics are the Focus of 2022-2023 Webinar Series

This year, The Marfan Foundation’s webinar series is focusing on the latest research related to Marfan, Loeys-Dietz, and VEDS with leading experts giving the presentations in our regular webinar format. As always, it is free to participate in these webinars, though registration is required.

The webinar schedule for the coming year currently includes the following. Please stay connected to The Marfan Foundation, Loeys-Dietz Syndrome Foundation, and The VEDS Movement to be informed as additional webinars are added.

September 19, 2022     

Aortic disease research, featuring highlights from the 2022 GenTAC Aortic Summit.

Presenter: Dr. Kim Eagle, Frankel Cardiovascular Center, University of Michigan, and GenTAC Chair. REGISTER.

November 9, 2022         

Physical activity research, featuring highlights from the many studies presented at Science in Paris (August 2022).

Presenters: Dr. Alan Braverman, Washington University in St. Louis, and Dr. Siddharth Prakash, UT Health. REGISTER.

February 23, 2023         

Genetics research. Presenter: Dr. Hal Dietz, Johns Hopkins. REGISTER.

March 29, 2023             

Lungs research. Presenter: Dr. Enid Neptune, Johns Hopkins. REGISTER.

May 2, 2023                   

Eye research. Presenters: Dr. Jefferson Doyle, Johns Hopkins, and Dr. Deborah Vanderveen, Boston Children’s Hospital. REGISTER.

All webinars will be held from 7 pm – 8 pm Eastern time. Each webinar includes a presentation followed by time for questions and answers.

Once registered, you will receive a login and can participate via your smartphone, tablet, or computer. There is also an option to call in.

For additional, educational opportunities, please visit the Foundation’s website.

If you have any questions, please feel free to contact Eileen Masciale, Chief Program Officer,

More on The Marfan Foundation’s Research Program

Supporting research is one of the Foundation’s critical mission areas. Our Research Grant Program is designed to provide financial support for investigators studying any or all disciplines involved in Marfan syndrome, VEDS, EDS, LDS, and other genetic aortic and vascular conditions. Grant awards are based on proposal evaluation by The Marfan Foundation Scientific Advisory Board with the approval of the Board of Directors.

In August 2021, the Foundation, which has funded 158 research grants and initiatives since 1989, announced it had updated its research grant program to have a more significant impact on scientific advances to improve the lives of people with Marfan, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions. The new grants are designed to encourage and support transformational science. Full details are here.

To support research and progress on Marfan, LDS, and VEDS, please donate here.

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The Marfan Foundation is a nonprofit organization that saves lives and improves the quality of life of individuals with genetic aortic and vascular conditions including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes. Our vision is a world in which everyone with genetic aortic and vascular conditions can live their best life.

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