Know the Signs, Fight for Victory

We save and improve lives of people living with genetic aortic and vascular conditions.

The Marfan Foundation is a nonprofit organization that saves and improves lives while creating a community for all individuals with genetic aortic and vascular conditions, including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos syndromes.

Latest Research and Updates

The Marfan Foundation is the primary source for up-to-date and trustworthy information for patients and family members as well as healthcare providers and researchers. If you or someone you love has Marfan syndrome or a related conditions, we offer easy-to-understand materials to help you on your medical journey.

Stories of Hope

  • Mental and Physical Recovery from Surgery

    This is me y’all. In all my glory. I’m scarred from the belly up. I have been conquering this thing called Marfan syndrome since birth.

  • Choices

    The moment in which a child is born is the most miraculous moment of opportunity. In the moment in which a human life enters the world, a million choices are laid out. The whole world is truly this tiny human’s oyster. Though for some…

  • Stronger Together

    A reflection from The VEDS Movement as The Marfan Foundation approaches its 40-year anniversary This year, The Marfan Foundation celebrates its 40-year anniversary, while The VEDS Movement begins its second year as a division…