La sindrome di Marfan è una malattia grave e alcune complicazioni sono potenzialmente letali. Grazie ai progressi dell’assistenza medica, le persone affette da sindrome di Marfan possono avere una durata di vita normale se la malattia viene diagnosticata e trattata in modo appropriato.
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Marfan Syndrome: The Basic Facts
Marfan syndrome is a life-threatening genetic disorder of the body’s connective tissue. Knowing the signs of Marfan syndrome, getting a proper diagnosis, and receiving the necessary treatment can enable people with Marfan syndrome to live a long and full life. What are the features of Marfan syndrome? Who has Marfan syndrome? What is life like […]
Tags: Marfan Syndrome , Patients & Families
Richtlinien Für Körperliche Bewegung
Regelmäßige Bewegung verbessert sowohl das körperliche als auch das emotionale Wohlbefinden und kann sicher in den Alltag von Patienten mit Marfan-Syndrom integriert werden. Daher werden Marfan-Patienten dazu angehalten, Maßnahmen zum Schutz ihrer Gesundheit zu ergreifen, die sie vor der Verschlechterung von Marfan-Merkmalen schützen und vor Erkrankungen bewahren, die ein normaler Teil des Alterungsprozesses sind. Wenn […]
Tags: Marfan Syndrome , Patients & Families
Familial Aortic Aneurysm and Dissection
A thoracic aortic aneurysm is an enlargement of the aorta in the thoracic cavity (chest area), which is the first part of the artery that takes blood away from the heart. A thoracic aortic aneurysm can progressively enlarge over time and doesn’t usually have symptoms. However, if an enlarged aneurysm is not surgically repaired, it […]
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