Molte persone affette da sindrome di Marfan o da alcune malattie correlate manifestano complicazioni polmonari, ovvero problemi ai polmoni. È importante che chi soffre di sindrome di Marfan si rivolga a uno pneumologo (uno specialista dei polmoni) se sospetta di avere problemi ai polmoni.
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Ectopia Lentis Syndrome Fact Sheet
In some families, dislocation of the lens of the eye (ectopia lentis) is the predominant feature that passes from generation to generation. Sometimes, this occurs along with some of the skeletal (bone and joint) features of Marfan syndrome. This combination of features is called ectopia lentis syndrome. What are the characteristics of ectopia lentis syndrome? […]
Diagnostic Du Syndrome De Marfan
Le syndrome de Marfan est une maladie grave dont certaines complications peuvent être mortelles. Les progrès réalisés dans les soins médicaux permettent désormais aux personnes atteintes du syndrome de Marfan d’avoir une espérance de vie normale si elles reçoivent un diagnostic et un traitement adapté.
Tags: Marfan Syndrome , Patients & Families
Need-to-know Information for the School Nurse
As the health needs of schools have changed since 1902, the role of school nursing has evolved to meet those changing needs. The school nurse plays an important leadership role in prevention of illness or injury, identification of medical problems through screening programs, and overall health maintenance. This is particularly important when a student has […]
Tags: Marfan Syndrome , Caregivers, Patients & Families
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