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Los Ojos de Marfan
El síndrome de Marfan puede afectar a los ojos de muchas maneras. Es por este motivo que las personas con síndrome de Marfan deben consultar a un oftalmólogo (un doctor médico que se especializa en los ojos) para saber si tienen algún problema y también para saber cómo pueden cuidar de sus ojos. He aquí […]
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Lungs in Marfan Syndrome
Many people with Marfan syndrome and some related disorders experience pulmonary complications, or problems with their lungs. If you have Marfan syndrome, it is important for you to see a pulmonologist (lung doctor) if you suspect that you have any problems with your lungs. What are the common types of lung problems in people with […]
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Family Planning and Pregnancy
Decisions about family planning can be difficult and very emotional when one of the prospective parents has a genetic disorder, such as Marfan syndrome. Before making any decisions, parents should understand the many options now available, as well as the potential risks to the child and the mother. A genetic counselor or the nurse in […]
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Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.