Téléchargez cette carte et conservez-la en cas d’urgence. Présentez cette carte aux urgences et demandez au médecin de suivre les instructions avant de vous libérer de ses soins.
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Download the Loeys-Dietz Syndrome Foundation's Emergency Alert Card, as well as watch a short instructional video we put together to show exactly how to fill out and fold this card.
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Marfan syndrome often causes problems in the bones and joints—in fact, these are often the features that first lead a person to suspect Marfan syndrome and seek a diagnosis.These features (called skeletal features) happen when bones grow extra-long or ligaments (connective tissue that holds joints together) become stretchy—like loose rubber bands. What are the common […]
Tags: Marfan Syndrome , Patients & Families
COVID-19 Myths Busted
Professional Advisory Board Member Enid Neptune, MD, Johns Hopkins, addresses some of the myths around COVID-19.
Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.