When you’re recovering from surgery or having a pain flare-up, people often ask how they can help. But when you’re not feeling well, it’s hard to know what to say. These worksheets are designed for adults, teens, and kids to communicate the best ways to support them through medical events.
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Decoding Genetic Insights: Navigating Possible Test Results
Understanding your genetic test results for conditions like Marfan, Loeys-Dietz, or VEDS can be challenging. Here’s a simple Q&A to help make sense of what your results may mean and what you might consider doing next.
Tags: Caregivers, Patients & Families
Diagnostic Du Syndrome De Marfan
Le syndrome de Marfan est une maladie grave dont certaines complications peuvent être mortelles. Les progrès réalisés dans les soins médicaux permettent désormais aux personnes atteintes du syndrome de Marfan d’avoir une espérance de vie normale si elles reçoivent un diagnostic et un traitement adapté.
Tags: Marfan Syndrome , Patients & Families
Tags: VEDS , Caregivers, Patients & Families, Teens & Children
Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.