When you’re recovering from surgery or having a pain flare-up, people often ask how they can help. But when you’re not feeling well, it’s hard to know what to say. These worksheets are designed for adults, teens, and kids to communicate the best ways to support them through medical events.
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Información esencial para los PROFESORES
El síndrome de Marfan es un trastorno genético potencialmente mortal que causa algunos problemas físicos que pueden interferir con la capacidad de un estudiante para desempeñarse en el aula sin modificaciones. Estas limitaciones físicas hacen que muchos estudiantes que viven con este trastorno se sientan aislados y solos. Esperamos que esta guía permita a los […]
Tags: Teens & Children
Need-to-know Information for the School Nurse
As the health needs of schools have changed since 1902, the role of school nursing has evolved to meet those changing needs. The school nurse plays an important leadership role in prevention of illness or injury, identification of medical problems through screening programs, and overall health maintenance. This is particularly important when a student has […]
Tags: Marfan Syndrome , Caregivers, Patients & Families
Diagnosi Della Sindrome Di Marfan
La sindrome di Marfan è una malattia grave e alcune complicazioni sono potenzialmente letali. Grazie ai progressi dell’assistenza medica, le persone affette da sindrome di Marfan possono avere una durata di vita normale se la malattia viene diagnosticata e trattata in modo appropriato.
Tags: Marfan Syndrome , Patients & Families
Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.