Author: Dominga Noe
Dominga Noe was diagnosed with Marfan syndrome when she was nine years old. After graduating from Wagner College with a BS in Arts Administration, began working for The Marfan Foundation in 2016 as the first staff member with Marfan. Now she lives and works from Kansas City, MO as the Foundation's Technical Content Manager, Teen Group Leader, and Teen Council Chair.
Mid-Atlantic Regional Chat
Join members of the Marfan, Loeys-Dietz and VEDS communities from the United States Mid-Atlantic...
The Marfan Foundation’s 39th Conference
The Marfan Foundation hosts an annual conference that provides people living with Marfan syndrome,...
Monthly Events Calendar
[MEC...
Genetic Testing: US and Europe
Laura Muiño Mosquera, MD, pediatric cardiologist and cardiogeneticist, Ghent University Hospital,...
Camp Victory for Kids – Georgia
Our unique Camp Victory for Kids program provides children and teens with genetic aortic...
Camp Victory for Families – Georgia
Similar to the kids’ camp, Camp Victory for Families offers children and teens with...