Author: Ennis Rook Bashe

Ennis Rook Bashe is a graduate student at NYU Silver School of Social Work and a 2021-2022 Marfan Foundation intern. They are also a proud cat parent and avid gamer.

Activating Your Activism

Emily Ladau, author and activist, is a part of the rare disease community. She lives with Larsen...

Advocacy, Education April 11, 2022April 11, 2022

Together, We Can Know the Signs
and Fight for Victory

View all Divisions

Marfan
Foundation
Loeys-Dietz Syndrome Foundation
The VEDS
Movement

View Our science and treatment arm

Know the signs. Fight for victory.

Join us in the fight for victory over Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions. Help us create a world in which everyone with these conditions can live their best life.

Donate Now

Activating Your Activism

Stay Connected on Social Media

Have a question? We can help.

Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory