Author: Jennifer Nielson

Jennifer Nielson is a member of The Marfan Foundation and the author of Rubberband Girl, a book about her daughter Hadley who is diagnosed with Marfan syndrome. She and her husband have five children and live in Gilbert, Arizona.

My Daughter’s First Marfan Conference – A Decade After Diagnosis

There we were, at The Marfan Foundation’s 2013 Annual Family Conference in Beverly Hills,...

Conference, Family Planning March 11, 2014February 25, 2021

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Author: Jennifer Nielson

My Daughter’s First Marfan Conference – A Decade After Diagnosis

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Together, We Can Know the Signs
and Fight for Victory

Know the signs. Fight for victory.

Join us in the fight for victory over genetic aortic and vascular conditions. Sign up to get the latest news and updates.

My Daughter’s First Marfan Conference – A Decade After Diagnosis

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Have a question? We can help.

Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory