Author: Jennifer Nielson

Jennifer Nielson is a member of The Marfan Foundation and the author of Rubberband Girl, a book about her daughter Hadley who is diagnosed with Marfan syndrome. She and her husband have five children and live in Gilbert, Arizona.

My Daughter’s First Marfan Conference – A Decade After Diagnosis

There we were, at The Marfan Foundation’s 2013 Annual Family Conference in Beverly Hills,...

Conference, Family Planning March 11, 2014February 25, 2021

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My Daughter’s First Marfan Conference – A Decade After Diagnosis

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Together, We are Fighting for Victory

Know the signs. Fight for victory.