Author: Lauren Atherton

Referral Letter and Features Chart

Referral Letter and Features Chart We created a template referral letter for you to use to...

October 16, 2021October 16, 2021

Know the Signs of an Aortic Aneurysm and Dissection

Cardiac Emergencies: Know the Signs of an Aortic Aneurysm and Dissection People with...

Kyphoscoliotic Ehlers-Danlos Syndrome (kEDS)

Kyphoscoliotic Ehlers-Danlos Syndrome (kEDS) What is Kyposcoliotic EDS? Kyphoscoliotic...

September 30, 2021September 30, 2021

Loeys-Dietz Syndrome Emergency Alert Card

...

September 27, 2021September 27, 2021

Professional Advisory Board Statement on the Recent FDA Warning Concerning Fluoroquinolones

...

September 26, 2021September 26, 2021

Recommended Criteria for Development of a Marfan Clinic

...

Together, We Can Know the Signs
and Fight for Victory

View all Divisions

View Our science and treatment arm

Know the signs. Fight for victory.

Join us in the fight for victory over Marfan syndrome, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions. Help us create a world in which everyone with these conditions can live their best life.

Donate Now

Stay Connected on Social Media

Have a question? We can help.

Together, We Can Know the Signs and Fight for Victory

Know the signs. Fight for victory.

Together, We Can Know the Signs
and Fight for Victory