A Look Back at 2025: Advancing Marfan and Genetic Aortic & Vascular Conditions Research with $1.44 Million in New Grants
Throughout 2025, The Marfan Foundation continued its longstanding commitment to accelerating...
Author: Susan Benvenuti
Susan Benvenuti is the VP, Integrated Marketing & Communications for The Marfan Foundation. She enjoys getting to know community members and sharing their unique stories. If you would like to share yours, we’d love to hear from you - get started by emailing sbenvenuti@marfan.org.
Camp Victory: Making Friends for Life
“My son thoroughly enjoyed his first time at camp,” said Vicci from the UK whose 11-year-old...
Stickler Syndrome: A New Chapter of Connection, Support, and Resources
Before Lissa Elkins and her husband welcomed twins in 2019, their life was busy but...
Cincinnati Regional Symposium Brings Experts and Families Together
On October 25, the Marfan Foundation and Cincinnati Children’s Hospital Medical...
COVID-19 Vaccine Statements
COVID-19 Vaccine Statements The Foundation's Professional Advisory Board has issued an...
“I felt at peace once it was done.” FreeWill estate-planning tool offered
How One Family Found Security Through a Free Foundation Resource ADVISORY: Please...
Teen Voices: Overcoming Challenges
Being a teen isn’t always easy, and teens with genetic aortic and vascular conditions like...
Have a question? We can help.
Contact our Help & Resource Center by
submitting a question via the link below.
Together, We Can Know the Signs
and Fight for Victory
