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February 2026

Walk For Victory – South Florida

Join the Walk for Victory movement!  Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions.  Together, we raise awareness and help families get the best medical care from leading experts.  Together, we help fund events and programs that improve the lives of our community: […]
01 Feb - 13 Jun
12:00 pm - 3:00 pm
T.Y. Park (Shelters 0-3)
3300 N Park Rd, Hollywood, FL 33021
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April 2026

Walk For Victory – Nashville

Join the Walk for Victory movement!  Together, we celebrate community! Meet and reconnect with friends who really understand life with Marfan, LDS, VEDS, and related conditions.  Together, we raise awareness and help families get the best medical care from leading experts.  Together, we help fund events and programs that make life better for our community: […]
11 Apr - 16 May
11:00 am - 2:00 pm
Seaver Park
3021 Lealand Ln, Nashville, TN 37204
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A Time to Talk: Monday Matters!

Join us for the Kids Club, a virtual social group for children ages 9-12 with Marfan syndrome, VEDS, Loeys-Dietz syndrome, and related genetic aortic and vascular conditions to increase opportunities for social interaction and connection with others who have a similar diagnosis.
13 Apr
Virtual
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Coping with Grief and Loss

Have you lost a loved one to Marfan syndrome or a related condition? Grief is a long and difficult process. Everyone experiences grief differently, but talking with others who can relate to what you are going through can be very helpful.
14 Apr
6:00 pm - 7:00 pm
Virtual
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Simposio virtuale sulle sindromi di Marfan, Loeys-Dietz, VEDS e Stickler

Invitiamo i pazienti e le loro famiglie a partecipare a un simposio virtuale con presentazioni, in italiano, dedicate alle sindromi di Marfan, Loeys-Dietz, Ehlers-Danlos vascolare (VEDS) e Stickler. Gli interventi si concentreranno sull’esercizio fisico e l’attività motoria, sull’immagine corporea e l’autostima, sulla pianificazione familiare e su altri temi di carattere medico. Inoltre, è previsto un […]
18 Apr
2:00 pm - 4:30 pm
Zoom
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Teen Talk

This is a teen group for teens ages 13-18 with VEDS, Marfan, Loeys-Dietz, or a related condition. Teens are invited to register to join in for a talk with other teens they can relate to.
20 Apr
7:30 pm - 9:00 pm
Zoom
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Best Practices for Preclinical Thoracic Aortopathy Studies

Join the Genetic Aortic Network on April 21 at 11:00 a.m. ET for a webinar on highlights from “Recommendations for Design, Execution, and Reporting of Studies on Experimental Thoracic Aortopathy in Preclinical Models” (Arteriosclerosis, Thrombosis, and Vascular Biology, 2025). During this session, Alan Daugherty, PhD, DSc (University of Kentucky, USA), Scott LeMaire, MD (Geisinger, USA), […]
21 Apr
11:00 am - 12:00 pm
Zoom
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