Viele Menschen mit Marfan-Syndrom und einigen anderen verwandten Erkrankungen haben einen schmalen Kiefer und einen hochgewölbten Gaumen, was zu Zahn- und Kieferproblemen führen kann. Darüber hinaus besteht bei Patienten mit Mitralklappenprolaps und künstlichen Herzklappen bei Zahnbehandlungen das Risiko einer Endokarditis (Infektion des Herzens und der Herzklappen), weshalb die Empfehlungen zur Endokarditisprävention (Prophylaxe) zu beachten sind.
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Victor McKusick Fellows
This award is for $150,000 for an MD and $100,000 for a PhD, over 2 years. It is designed to support postdoctoral fellows embarking on a scientific career in biomedical research related to Marfan syndrome or any of the genetic aorta or vascular conditions that are within the Foundation’s scope of interest. Fellows up to […]
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Genetic Testing and Marfan Syndrome
Genetic testing for mutations in fibrillin-1 (FBN1) and other genes has become an important and reliable option to aid in the diagnosis of Marfan syndrome and related disorders. However, the results of genetic testing for the diagnosis of disorders are not always straightforward. Therefore, working with a medical geneticist (a physician with training in genetics) […]
Tags: Marfan Syndrome , Patients & Families
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Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.