Viele Menschen mit Marfan-Syndrom und einigen anderen verwandten Erkrankungen haben einen schmalen Kiefer und einen hochgewölbten Gaumen, was zu Zahn- und Kieferproblemen führen kann. Darüber hinaus besteht bei Patienten mit Mitralklappenprolaps und künstlichen Herzklappen bei Zahnbehandlungen das Risiko einer Endokarditis (Infektion des Herzens und der Herzklappen), weshalb die Empfehlungen zur Endokarditisprävention (Prophylaxe) zu beachten sind.
Related Resources
Shprintzen-Goldberg Syndrome Fact Sheet
Shprintzen-Goldberg Syndrome is a condition that affects many parts of the body. People who have this syndrome have a combination of unique facial features and skeletal and neurological abnormalities. Shprintzen-Goldberg syndrome is caused by genetic changes (mutations) in a gene that contributes to the formation of connective tissue. How prevalent is Shprintzen-Goldberg syndrome? What are […]
Victor McKusick Fellows
This award is for $150,000 for an MD and $100,000 for a PhD, over 2 years. It is designed to support postdoctoral fellows embarking on a scientific career in biomedical research related to Marfan syndrome or any of the genetic aorta or vascular conditions that are within the Foundation’s scope of interest. Fellows up to […]
Tags: All , Healthcare Professionals, Researchers
Parent Toolkit
This Parent Toolkit is a resource for parents of children with Marfan, Loeys-Dietz, VEDS, or another genetic aortic condition. It offers resources to help you deal with your child’s school, doctors, and healthcare, and guide you to additional resources for information and support.
Tags: Loeys-Dietz Syndrome, Marfan Syndrome, VEDS , Caregivers
Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.