What are the most common gastrointestinal issues in people with connective tissue conditions? The answer to this question and more can be found in this document from Tony Guerrerio, MD, PhD.
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Directory of Medical Institutions (Clinic Directory)
A coordinated clinic is the best place to go for Marfan syndrome and related disorders care. A coordinated clinic provides expertise in all Marfan-related specialties: genetics, cardiology (heart), ophthalmology (eyes), and orthopedics (bones and joints). Download our clinic directory, which is comprised of institutions around the country that treat Marfan syndrome and related conditions. We […]
La Excoliosis y el Síndrome de Marfan
La escoliosis es una curvatura de la columna hacia un lado. Aproximadamente 6 de cada 10 personas con síndrome de Marfan tienen escoliosis, pero solamente 1 de cada 3 necesitan tratamiento médico para ella. Una persona necesita tratamiento cuando tiene dolor de espalda, cambios importantes en su postura y la forma de su cuerpo o […]
Tags: Marfan Syndrome , Patients & Families
Loeys-Dietz Syndrome Emergency Alert Card
Download the Loeys-Dietz Syndrome Foundation's Emergency Alert Card, as well as watch a short instructional video we put together to show exactly how to fill out and fold this card.
Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.