Patienten mit Marfan-Syndrom haben häufig Probleme mit dem Herzen und den Blutgefäßen. Mitunter sind diese Probleme sehr ernst. Die häufigste Komplikation betrifft die Aorta (das große Blutgefäß, das Blut vom Herzen in den Körper transportiert). Die Herzklappen können ebenfalls betroffen sein. Andere Blutgefäße als die Aorta sind seltener betroffen. Eine frühzeitige und genaue Diagnose ist entscheidend, um medizinische Probleme mit dem Herzen und den Blutgefäßen zu erkennen und zu behandeln, bevor sie zu potenziell lebensbedrohlichen Notfällen werden.
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Family Planning and Pregnancy
Decisions about family planning can be difficult and very emotional when one of the prospective parents has a genetic disorder, such as Marfan syndrome. Before making any decisions, parents should understand the many options now available, as well as the potential risks to the child and the mother. A genetic counselor or the nurse in […]
Bicuspid Aortic Valve
Bicuspid aortic valve (BAV) is a defect of the aortic valve that is present at birth. The aortic valve allows oxygen-rich blood to flow from the heart to the aorta. The aorta is the major blood vessel that brings blood to the body. Normally, there are three valve flaps (leaflets) in the aortic valve. In a person who […]
Walk for Victory Registration Guide
Register for your Walk for Victory by following the simple steps in our registration guide. Whether you join as an individual or create a team, we look forward to seeing you soon!
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Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.