De nombreuses personnes atteintes du syndrome de Marfan et de certaines maladies apparentées possèdent une mâchoire étroite et un palais très arqué, ce qui peut entraîner des problèmes dentaires et orthodontiques. En outre, les personnes avec un prolapsus de la valve mitrale ou porteuses de valves cardiaques artificielles sont à risque d’endocardite (infection du coeur et des valves cardiaques) pendant une intervention dentaire. Elles doivent respecter les recommandations en matière de prévention de l’endocardite (prophylaxie).
Related Resources
Everest Grant
This is a large, multi-institutional, transformational grant designed to “reach the summit” on a critical path to a breakthrough in basic or translational science that has direct relevance to human health. It must include an institutionally funded graduate student or fellow. Engagement of multi-disciplinary investigators or pharma is highly desirable. Single grant of $200,000 per […]
Tags: All , Healthcare Professionals, Researchers
The Eyes in Marfan Syndrome
Marfan syndrome and some related disorders can affect the eyes in many ways, causing dislocated lenses and other eye problems that can affect your sight. Except for dislocated lenses, these eye problems also occur in the general population, which is why doctors do not always realize they are caused by Marfan syndrome. It is important […]
Tags: Marfan Syndrome , Patients & Families
Parent Toolkit
This Parent Toolkit is a resource for parents of children with Marfan, Loeys-Dietz, VEDS, or another genetic aortic condition. It offers resources to help you deal with your child’s school, doctors, and healthcare, and guide you to additional resources for information and support.
Tags: Loeys-Dietz Syndrome, Marfan Syndrome, VEDS , Caregivers
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Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.