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Patient Care Coordination Instructions
In order to have better outcomes in the emergency department for people with genetic aortic and vascular conditions, a Patient Care Coordination Note (PCCN), can provide triage nurses and ER physicians, with life-saving information for these rare conditions. This patient care coordination note appears in the upper left hand corner in red, when you open […]
Tags: All, VEDS , Healthcare Professionals, Patients & Families
I Denti Nella Sindrome di Marfan
Molte persone affette da sindrome di Marfan o alcune malattie correlate hanno una mascella stretta e un palato alto e arcuato, che possono causare problemi dentali e ortodontici. Inoltre, chi presenta prolasso della valvola mitrale ed è portatore di valvole cardiache artificiali è a rischio di endocardite (infezione del cuore e delle valvole cardiache) in […]
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Endovascular Repair in Marfan Syndrome Patients
Endovascular Repair in Marfan Syndrome Patients The Professional Advisory Board of The Marfan Foundation is in agreement with the Expert Consensus Document on the Treatment of Descending Thoracic Aortic Disease Using Endo-Vascular Stent-Grafts (Ann Thorac Surg 2008;85:S1-41) and the American Heart Association (AHA) guidelines entitled “Surgical Management of Descending Thoracic Aortic Disease: Open and Endovascular […]
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