Resource Library

Explore hundreds of free resources to help you on your journey.

National Registry of Genetically Triggered Thoracic Aortic Aneurysms and Cardiovascular Conditions (GenTAC)

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Tags: Loeys-Dietz Syndrome, Marfan Syndrome, VEDS , Healthcare Professionals

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NCBI Genetic Testing Registry

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Tags: Loeys-Dietz Syndrome, Marfan Syndrome, VEDS , Healthcare Professionals

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Síndrome de Marfan A a Z

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Tags: Marfan Syndrome , Patients & Families, Teens & Children

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Lineamientos Para la Actividad Física

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Tags: Marfan Syndrome , Caregivers, Patients & Families

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National Institute for Arthritis and Musculoskeletal and Skin Diseases (NIAMS)

Gene Tests National Institute of Health (NIH)

National Registry of Genetically Triggered Thoracic Aortic Aneurysms and Cardiovascular Conditions (GenTAC)

NCBI Genetic Testing Registry

Síndrome de Marfan A a Z

Lineamientos Para la Actividad Física

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Materials Request

Know the signs.
Fight for victory.

Request Materials

Materials Request

Know the signs.Fight for victory.

Know the signs.
Fight for victory.