In order to have better outcomes in the emergency department for people with genetic aortic and vascular conditions, a Patient Care Coordination Note (PCCN), can provide triage nurses and ER physicians, with life-saving information for these rare conditions. This patient care coordination note appears in the upper left hand corner in red, when you open the outpatient chart under snapshot and in some other views depending on how your EPIC is set. The PCCN can outline critical information to treat patients with rare conditions.
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Carte D’Alerte
Téléchargez cette carte et conservez-la en cas d'urgence. Présentez cette carte aux urgences et demandez au médecin de suivre les instructions avant de vous libérer de ses soins.
Endocarditis Prophylaxis for People with Marfan Syndrome
Endocarditis Prophylaxis for People with Marfan Syndrome In April 2007, the American Heart Association (AHA) revised its guidelines for antibiotic treatment at the time of dental procedures and other medical situations in which there is a high likelihood of bacteria entering the bloodstream. In general, the AHA guidelines are the “gold standard” in the United […]
Skin in Marfan Syndrome
Stretch marks on the skin (striae atrophicae) may occur in anyone, particularly as a result of rapid growth during adolescence, pregnancy or marked weight gain or loss. People with Marfan syndrome are prone to develop stretch marks, often at an early age and without weight change. The marks tend to appear in body parts subject […]
Tags: Marfan Syndrome , Patients & Families
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