Le syndrome de Marfan est une maladie génétique potentiellement mortelle qui touche le tissu conjonctif du corps. Reconnaître les signes du syndrome de Marfan, parvenir au diagnostic juste et recevoir le traitement nécessaire peuvent permettre aux personnes atteintes de vivre une existence longue et épanouie.
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Tessera Di Allerta Medica
Stampa la carta per ogni membro della famiglia. Inserisci il nome del paziente e le informazioni di contatto. Taglia lungo la linea tratteggiata. Piega verticalmente e orizzontalmente. Porta sempre con te questa carta.
Notfall-Bereitschafts Paket
Dieses Kit ist Ihr Werkzeug, um im Notfall vorbereitet zu sein. Wir empfehlen, das fertige Paket in einen bunten Umschlag oder Ordner zu legen, damit es leicht zu finden ist.
Loeys-Dietz Syndrome Emergency Alert Card
Download the Loeys-Dietz Syndrome Foundation's Emergency Alert Card, as well as watch a short instructional video we put together to show exactly how to fill out and fold this card.
Know the signs.
Fight for victory.
Join us in the fight for victory over Marfan syndrome and related conditions and help us create a brighter future for everyone living with these conditions.